Translation and Culture Adaptation of Problems and Needs of Palliative Care Questionnaires for Use in Older People in Indonesia

Lia Juniarni, Wini Hadiyani, Tri Antika, Linlin Lindayani

Abstract


Abstract

Introduction: Identifying problems that affect the quality of life and the need for care generally requires using a unique screening tool with the same characteristics as those used to achieve goals. However, in a clinical setting, palliative care problems and needs are given less attention and are poorly understood. In addition, there is currently no validated instrument for measuring the problems and needs of palliative care in older people. Objectives: This study aimed to develop and validate a new instrument that assessed palliative care problems and needs in older people. Methods: Items were generated through a review of the literature and refinement by an expert. The instrument was psychometrically evaluated using construct validity with convergent and discriminant validity. At three community centers in Bandung, Indonesia, 187 older people completed the final instrument. Results: According to the confirmatory validity test, 35 items were found to be valid. For a problem section, the factor loading ranged from 0.17 to 0.67 and for the need section from 0.17 to 0.61. Scale reported good convergent and constructed validity A 35-item psychometric properties assessment of palliative care issues and needs of older people. Discussion: This instrument will be clinically useful in providing a systematic way to assess problems and needs of palliative care in older people as primary data and care management evaluation. Additional research should be conducted to examine alternative methods for establishing construct validity.


Abstrak

Pendahuluan: Mengidentifikasi masalah yang mempengaruhi kualitas hidup dan kebutuhan akan perawatan memerlukan alat skrining khusus yang memiliki karakteristik yang sama dalam mencapai tujuan. Namun, dalam pengaturan klinis, masalah dan kebutuhan perawatan paliatif kurang mendapat perhatian dan kurang dipahami. Sampai saat ini, tidak ada instrumen tervalidasi khusus untuk mengukur masalah dan kebutuhan perawatan paliatif pada lansia. Tujuan: Tujuan dari penelitian ini adalah untuk mengembangkan dan memvalidasi instrumen baru yang mengukur masalah dan kebutuhan perawatan paliatif pada lansia. Metode: Item dikembangkan melalui tinjauan pustaka dan pemurnian oleh seorang ahli. Evaluasi psikometri instrumen dilakukan dengan menggunakan validitas konstruk dengan validitas konvergen dan diskriminan. Sebanyak 187 lansia berpartisipasi dalam penelitian ini yang dilakukan di 3 wilayah kerja puskesmas di Bandung Indonesia. Hasil: Sebanyak 35 item dilaporkan valid menurut uji validitas konfirmasi. Factor loading berkisar antara 0,17 hingga 0,67 untuk bagian masalah dan 0,17 hingga 0,61 untuk bagian bantuan tenaga kesehatan. Sedangkan, hasil uji validitas konvergen dan diskriminan menunjukan hasil yang baik. Sebanyak 35 item pertanyaan untuk masalah dan kebutuhan sudah dilakukan tes psikometri pada lansia. Diskusi: Instrumen ini akan berguna secara klinis dalam menyediakan data secara sistematis untuk mengidentifikasi masalah dan kebutuhan perawatan paliatif pada lansia  sebagai data primer dan evaluasi manajemen perawatan. Penelitian selanjutnya perlu dilakukan untuk mengidentifikasi validitas instrumen ini deng alternatif untuk membangun validitas konstruk.


Keywords


problems; needs; palliative care; older people; instrument; development

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References


Azwar, S. (2014). Reliabilitas Dan Validitas. Pustaka Pelajar.

Bolarinwa, O. A. (2015). Principles and methods of validity and reliability testing of questionnaires used in social and health science researches. The Nigerian Postgraduate Medical Journal, 22(4), 195–201. https://doi.org/10.4103/1117-1936.173959

Colón-Emeric, C. S., Whitson, H. E., Pavon, J., & Hoenig, H. (2013). Functional decline in older adults. American family physician, 88(6), 388–394.

Dharma, K.K. (2011). Metodologi penelitian keperawatan: Panduan melaksanakan dan menerapkan hasil penelitian. Trans Info Media.

Osse, B.H., Vernooij, M.J., Schade, E., and Grol, R. P. (2004). towards a new clinical tool for needs assessment in palliative care of cancer patients: the PNC instrument. Journal of Pain and Symptom Management, 28, 329–341.

Sastroasmoro, S., Ismael, S. (2014). Dasar-dasar metodologi penelitian klinis / Sudigdo Sastroasmoro. Sagung Seto.

United Nation. World Population Ageing 2019. 2019. Available at https://www.un.org/en/development/desa/population/publications/pdf/ageing/WorldPopulationAgeing2019-Highlights.pdf

WHO. (2019). Management of substance abuse. Process of translation and adaptation of instruments. https://www.who.int/substance_abuse/research_tools/translation/en/

WHO. (2019). Integrating palliative care and symptom relief into primary health care: a WHO guide for planners, implementers and managers. Available at https://apps.who.int/iris/bitstream/handle/10665/274559/9789241514477-eng.pdf?ua=1




DOI: https://doi.org/10.17509/jpki.v7i1.26229

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